A Patient Perspective of Medical Care in the US

Part of the aftermath of making a long distance move is establishing new doctors. I’ve completed the process at this point – 8 months after the move. It’s been a learning experience. I started out with the intention to find a primary care physician and specialists in the same system so that I would only have one portal for all my medical information – unlike my legacy situation that involved at least 4 different portals. The portal for my new doctors is well organized and has become the primary way I get results and send questions/messages to my doctors. In general, the lab work is done very quickly and posted on the portal; I see it about the same time that the doctor sees it. The system of doctors – specialists – labs – hospital also includes several urgent care facilities that I appreciate; their availability can help avoid a busy ER; I’ve already used an Urgent Care facility prior to my first appointment with my new primary care doctor when I got a very painful bite that looked infected. On the downside -

  • Vision and dental care are not general part of ‘medical care’ from an insurance perspective or systems with MDs; vision and dental are still separate. The initial dental practice I selected wanted to do very different (and expensive) kinds of cleaning for my teeth and I’ve opted to go to a new one that is more like the dental practices I’ve used in the past. It’s hard to know how to evaluate dental recommendations since they are outside of the primary medical system. I like the vision care practice I chose but may have similar misgivings as I get closer to needing cataract surgery.

  • The various specialist doctors and non-blood labs/radiology are in separate buildings; they are relatively close together, but I am careful to record the building address  in my appointment calendar; it’s a high traffic area and it could be challenging to get to the appointment on time if I went to the wrong building first.

Thinking about the big picture of medical care in the US - It is not achieving ‘best in world’ results based on healthy lifespan stats. Why is that?

  • Insurance is expensive and confusing. I’ve had health insurance since the late 1970s and the trend has been increasing cost and complexity over the duration. Checking that doctors are in-network and drugs are ones that are on the formulary is a required skill to get insurance to cover costs….and even then, sometimes surprise charges occur. What happens when your doctor prescribes a drug that is not on the insurance company’s formulary? I am very aware that I have been fortunate to always be insured….understand that the cost of good medical insurance is prohibitive to many and that often means not getting medical care until there is a health crisis…and going to an emergency room.

  • Cultural reluctance/aversion to embrace public health measures. Over the past decade, there has been increased resistance to public health measures (for example, not getting vaccinations for children, older adults declining vaccines, flying when sick (coughing, sneezing),  and aggressively against mask wearing at any time) and demands on health professionals for treatment that is not appropriate for their condition (for example, demanding an antibiotic for a viral infection or are an ineffective drug for COVID or a drug advertised on television that is for a condition the patient does not have). I am mentioning the demands for inappropriate treatment under public health because it impacts the costs for medical care overall, increases resistance of microbes to antibiotics making them less effective when they are needed, and makes the workplace for doctors/nurses more stressful (and some decide to leave the profession resulting in shortages of skilled personnel).

  • Dominate lifestyle. We live in a world of fast food and ultra-processed foods…people are more sedentary because of their jobs or the type of entertainment they choose. It is harder to “eat healthy” now that when I was growing up and as a young adult. Many people in the country are obese and/or in poor physical condition. However – there are a lot healthier foods available now if we educate ourselves. For example – kale was not something I ate as child, now it is my ‘super green’; other foods that I’ve only know in the past 20 or so years include: pomegranates, edamame, beet greens, red cabbage, butternut squash, ground turkey. There are also a lot of ways to measure physical activity…and some have leveraged those metrics to become more physically fit. Still – healthy lifestyles are not as prevalent now. The bump in life expectancy that was achieved after many people managed to stop (or not start) smoking is being eroded.

  • Aggressive intervention with drugs. The medical system tends to treat with drugs rather than recommending lifestyle changes. Part of this skew is the way doctors are trained (often nutrition is not included in their education) and part is probably based on their experience that most patients will not follow through and make a change. If a drug can change the measure the doctor is seeing (like blood pressure or cholesterol levels), then the doctor tends to immediately medicate. Any unwanted side effects from the drugs are resolved through changing to a different drug or adding a drug to reduce the side effect or telling the patient that the benefit of the drug is greater than the impact of the side effect. But – if people can change their lifestyle, they are probably addressing the root cause of the problem rather than artificially doing something that changes the measure but leaves what is causing the problem the same. Long term maybe we’ll know if the drugs really do very much for increasing healthy lifespan.

  • Specialists with blinders to anything outside their specialty. The notion that a primary care physician can integrate care is overly optimistic.

    • Many times, the specialists are proceeding with their focus; if treatment is meeting the measures they want, side effects or over medication are not a priority for them.  For example – an endocrinologist adjusting medication to get the levels of hormones to a precise level is often unconcerned or dismissive of a patient reporting heart palpitations, hot flashes, and eyebrows falling out.

    • Emergency room doctors are focused on resolving the primary cause of the emergency visit and sending the patient home as soon as possible; this leads to quick fixes that often do not prevent the same issue occurring repeatedly. A good example is cellulitis in older patients; the ER gives them antibiotics and they go home…often returning with cellulitis again in a month or so. If the ER is not overwhelmed and there is an alert attending in the ER or in the hospital, more proactive measures can be taken…perhaps re-evaluating the dosage levels and complexity of existing medications, adding a prophylactic antibiotic, etc. that can prevent rapidly recurring ER visits for cellulitis.

  • Lack of trust. Patients believe doctors may have alternative incentives than patient health when recommending treatment/drugs and doctors believing patients may not be doing as they say and/or taking meds as prescribed. Not sure how this can be bridged other than encouraging more transparency on both sides.

The bottom line – I want to believe that I am proactively maintaining my health and being a knowledgeable patient that asks relevant questions to understand my doctors’ logic….thus making the best of the medical care available…but there are certainly times that I have some doubts. So far, I have been able to resolve those doubts and am satisfied that I am on a healthy path. However - I am increasingly concerned about individuals with fewer financial resources, less healthy or not as knowledgeable. The trend is toward more challenges within the US healthcare system!

Unique Aspects of Days – October 2022

Unique aspects of October….

Border crossing (US to Canada). This was not the only time I crossed the boarder from the US to Canada…but the first time in more than  decade…so rare enough to be unique for me. It was the first day of their new policy to no longer require documentation of COVID-19 vaccination….probabay made it a little faster than it would have been the day before.

Buying a baby present in Canada. Two aspects of uniqueness of this one: deciding that having a baby in my exended family is unique enough to buy an ad hoc present and enjoying shopping during vacation …wanting to buy something (and not always something for me).

Discovering that the fireplace vent was leaking cold air into my office and the hearth room upstairs. There was cold air from the bottom of our gas fireplace doors (the vent area) during our first cold weather of the season. The magnetic strip I ordered from Amazon has fixed the problem…and I am glad I noticed the problem so quickly.

Dry Cleaners. I hadn’t been to a dry cleaners in years. I probably could have taken the jackets I had been wearing for a couple of years several years ago…but then the pandemic stopped our being out and about. I aired the jackets and continued to wear them occasionally. When I went to a dry cleaners near our new house, I was the only customer…and the racks didn’t look very full either.

Exploding broccoli. I was pleased to find a cup of carrots, cherry tomatoes, and broccoli in one of the places we stopped on our way back from Canada. I had not anticated that the lid would be so hard to get off. As my daughter was pulling us out of the parking lot, I was working on the packaging…finding it a bit of a challenge…when the lid suddenly came off and broccoli flew out into my lap and onto the center console! I ate it anyway…and the other veggies too!

Hail. We had quarter sized hail at our house for a brief time. I’m glad our cars were in the garage. In Maryland we never got hail above pea sized (and it was slushy). This hail bouced and stayed around on the ground longer!

Peppermint honey. I bought some peppermine infused honey in Canada…and it is yummy!

Sitting in a sunny window like a cat. A very nice place on a cold morning while I was in Canada.

Tator tots. I hadn’t had tater tots in a lot time….and they were a big disappointment…so the event will probably be unique.

Went to the doctor’s office but the doctor had called in sick. I was signing in for a doctor’s appointment when the nurse came from the back and informed the front desk that the doctor had called in sick! I ended up making an appointment with another doctor since she was so fully booked it would be more than a month before I could be worked into her schedule!

Unique Aspects of Days - July 2022

Settling into our new home in Missouri is still prompting unique aspects of our days!

1st doctor’s appointment in Missouri. Getting medical records transferred from a specialist in Maryland to a new specialist in Missouri was a first for me…and I was pleasantly surprised that it happened so easily and that the new doctor continued the monitoring/treatment as I expected.

Callery Pear to the recycle center. It was a unique experience to discover a pear tree growing in a crepe myrtle in a front flower bed of my new house. I cut it down…discovered it had thorns…and was very pleased to get it cut up enough to fit in the back of my car and then to the recycle center yard waste bins without injuring myself. It was an experience I hope is unique!

Unpacking the art glass. I packed it but my husband unpacked it. There was a joy in packing and unpacking the beautiful pieces….savoring them individually and then again as a whole in the display cabinet. We left 2 pieces that are on light stands out on a desk beside the piano to act as ‘night lights’ in that part of the house. It has been over 25 years since we enjoyed the glass the way we did in July.

Making a compost ring with cedar edging. I bought two sections of edging made with 3-6 inch vertical lengths of cedar branches and formed a circle to hold my kitchen scraps and soft yard waste under one of our pine trees. There is not enough material to require a bigger compost bin so this is a relatively unique solution. I’m not sure whether I will move the ring once the compost is deteriorating enough to continue as a pile without the ring or ready to spread out. There is space to move the ring and start another collection nearby.

Finding the camera battery charger. It seemed like there were about 5 times this month where we came close to panic because we couldn’t find something we needed in our new home. The one that had me most worried was not knowing where the charger was for my camera battery; luckly I found it after an hour or so of hunting through boxes. Now that we have unpacked most of the boxes, it is less likely to occur…making this particular kind of anxiety unique to July 2022.

Forgot my toiletries. I travel frequently enough that I rarely forget anything I need…but I did for our trip back to Maryland for the closing on our house there! The compartment bag for toiletries was left hanging on the bathroom door in Missouri. I quickly bought essentials…glad this event was unique in my travels.

Hot and dry Josey Ranch lake. The lake at Josey Ranch near where my parents live was lower than I’ve seen with deep cracks where there is usually water or mud. The cattails area is dry and other plants are taking over. I hope this is unique and not what it will be like every summer from now on in Carrollton TX.

Hummingbird moth. I was surprised…glad I had my camera with me…when I spotted a hummingbird moth at the Springfield Botanical Garden. They are fun insects to watch and I always feel priviledge to see even one a year.

Hummingbird outside my office window…on the crepe myrtle. I looked out my window one morning and saw a hummingbird checking out the crepe myrtle outside my office window. It was the first I’d seen in our Missouri yard.

Missouri watermelon at the Carrollton (TX) Walmart. I noticed that the watermelon I bought for my parents in the Carrollton Walmart had been grown in Missouri…and discovered when I got home to Missouri – the watermelons in the Walmart were from Missouri too!

Cancer Diary – Entry 12

4 weeks after surgery:

  • The surgical glue has flaked off the incision. I collected the bigger pieces and did a round of macro photography – commemorating the milestone – before throwing them away. The texture of the glue varied…crinkled, fibrous, crystalline. Blood that became embedded in it provided some color.

  • I’ve started putting Vitamin E and cocoa butter on the scar to help it fade over time (and am keeping it protected from exposure to sunlight).

  • The hematoma is mostly gone. The speed of the ‘clean up’ increased over the last week.  

  • On a not-so-positive note – I’ve been celebrating too much with food and my weight has started to creep upward…starting work to reverse that and continue on my plan to reduce 5+ pounds from my weight at the beginning of the year.

This with be the last Cancer Diary post unless something else happens. Right now -  the prognosis is good with continued monitoring tests to confirm. All the baseline tests indicate that the cancer was caught early and that my ongoing risk is low.

My experience has prompted me to think about what ‘good medical care’ means….what led to the early diagnosis and treatment. Looking back…it was a 12-year progression from a blood test revealing a risk factor prompting annual monitoring blood tests and ultrasounds. There was a biopsy with a benign result 6 years ago….and lastly a biopsy that revealed the cancer last fall. My primary care doctor coordinated all the monitoring until 2 years ago; I opted to go to a specialist thereafter. The specialist recommended the surgeon. Of the three, the specialist is the best at sharing his rationale of monitoring and treatment….and that is something I have come to appreciate more over the past few months.

Previous cancer diary posts:

Cancer Diary – Entry 11

The doctor that referred me for cancer surgery scheduled a follow up appointment for about 2.5 weeks after the surgery - assuming the surgeon would complete his role at about 2 weeks after the surgery (which I posted about in the 10th Cancer Diary post). The appointment with the doctor that will continue my care is the most recent milestone in my journey with cancer and getting treatment. He confirmed that I would not need radiation/chemo and ordered blood lab tests immediately and developed a plan for the next year: periodic blood tests and an ultrasound in a year. I am pleased that my cancer was caught early enough that I am on track to be ‘cured’ rather than living with cancer for the rest of my life.

It was bitterly cold the day of the appointment…but I was buoyed by the results I already knew from the surgeon and the continued fading of the hematoma/healing of the incision. The doctor provided excellent feedback and answered questions…the tech that did the blood draw did a great job getting the needle in smoothly then filling the multiple vials of blood required. On the way out of the building, I stopped for a few seconds to photograph the garden that looked so inviting when the weather was warmer; the fountain is turned off now and it’s too cold to linger but I still like the look of the place. I hurried to my car, thoroughly chilled, but appreciating the time out in the world, away from home. I celebrated that the appointment had been early enough that I got a close parking space!

I am so buoyed by the results that I am feeling more optimistic than I have all during the pandemic; I realize that, even though I was consciously reminding myself that the cancer had been detected early, I experienced a deep anxiety about it that became part of everything I was thinking and doing for the past few months.  Now I’ve started wearing earrings again (when I am not going to be taking a mask off and on), buying flowers every week at the grocery story and making multiple arrangements to place everywhere in the house. This is a time of celebration…a time to be happy that I am healthy and enjoying winter 2022.

Previous cancer diary posts:

Cancer Diary – Entry 2

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The appointment with my doctor was at 8 AM. I had printed out my list of questions and walked outside to see how cool it felt before I got in my car. There were two surprises near the driveway: a stalk of late season day lily buds that the deer hadn’t eaten and the Virginia Creeper on the oak beginning to turn red. I unplugged my car…and set out.

Since I was the first wave of patients at the medical building, there were still places available close the building in the ‘fuel eff low emit parking’ lane. I was a few minutes early and noted that the landscaping around the building has been transitioned to native plants.

It was so quiet with no one else around that I heard water burbling just before I went into the building and looked over the railing to see a shady rock garden with water coming from one of the larger rocks at one level down from the main entrance. I hadn’t noticed it before.

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It was a pleasant way to start the morning – noticing the beauty in the natural world. Even so – my first blood pressure reading of the appointment was a little high; I was relieved that after my conversation with the doctor (getting all my questions answered and a plan for what I should do prior to my appointment with the surgeon), my blood pressure was well within the normal range. It was an indicator that, for me, being armed with information is an important way to reduce the stress of the situation….also an indicator of the skill of my doctor which is also reassuring.

Later in the day, I called my parents to share the cancer news (made sure one of my sisters was with them when I did) and to delay my road trip to see them until at least after my appointment with the surgeon…and maybe after the surgery itself. It was not an easy conversation but necessary; there is a history of sharing health situations within the family that guided me. A part of every cancer journey is taken alone…and part is shared; for me, the shared times make the part walked alone easier.

Overall – by the end of the second day into my experience, I felt more knowledgeable and optimistic about the eventual outcome. I was also beginning a conscious effort to keep my normal positive mental attitude over what might be an extended period.